Toddler Receives Life-Saving Treatment for Short Gut Syndrome
One-year-old Logan Manning has been through more in the first year of his life than most people experience in a lifetime.
At just 7-months-old, the Clarksburg toddler was diagnosed with short gut syndrome and has spent over 90 days in the hospital since he was born.
“To this day we still don’t know what caused it,” said mom Kayli Manning. "He was a perfectly healthy typical growing 7-month-old; he ate and drank fine and all of a sudden within hours we were rushing him to the hospital and he was being prepped for surgery,” she added.
In July of 2015, he was taken to the emergency room after his mother found blood in his diaper. “Within the six hours, we had been there he had become very lethargic and wasn’t responding to stimulus,” said Manning. They found out that he had an intussusception -- when the bowel tunnels into itself, she added.
In Logan’s situation the large bowel had twisted, causing it to lose blood supply. It then became necrotic and died. Logan was then brought in for surgery the following day where 30cm of his large intestine was removed.
"To this day we still don’t know what caused it. He was a perfectly healthy typical growing 7-month-old…” ~ Kayli Manning, Logan's mom
He wasn’t out of the water yet; after spending 4 weeks in the hospital he just wasn’t getting better. “He couldn’t eat anything and he was just having a lot of complications,” said Manning. “Four weeks later, in August, he went back in for an exploratory surgery and they found out that his small bowel was also affected," she added.
Road to Recovery
Now with the help of doctors, nurses and staff at the Baystate Children’s Specialty Center, Logan is on the road to recovery. He is currently being fed a special formula via a drip feed that goes directly into his intestine.
“This allows for full absorption of nutrients without over working his system,” said Dr. Anastasios Angelides, a pediatric gastroenterologist at the Baystate Children’s Hospital Specialty Center, and the doctor responsible for Logan’s care. “A full diet would be too overwhelming. Limited feedings allow his intestines to heal. It will also help us test the limits of his tolerance to a full diet.”
Manning says it’s great having all of the specialties in one place in the specialty center. “They have always have really worked with us they schedule all of our appointments at the same time. The first time we had a nutrition and gastrointestinal appointment, they had everyone come in the same room so we didn’t have to make a trip or even move,” she said.
“We’ve become very close with all of our doctors and nurses. They really truly work together. They talk amongst each other in front of us so we’re all on the same page,” said Manning. “We are all a part of his team. We’ve always been included, which has been great for us to be actively involved in his care.”
While he has been diagnosed with short gut syndrome, it’s considered a temporary diagnosis. “Right now he is diagnosed with a temporary short gut syndrome because they do plan to reverse it. He does have his small bowel, and the hope is that it will have soon healed enough that it will function,” said Manning.
“Logan’s outlook is very good,” said Angelides. “The hope is over the next few months, his intestine rehabilitation will be sufficient enough where he can start eating a full diet and eventually come off the supports.”